NIH Poised to Share Data with “All of Us” Participants

The nearly 200,000 Americans to date who have trusted federal scientists with their DNA, their medical records, and detailed behavioral surveys will soon begin to receive the results of a genetic analysis performed by the National Institutes of Health (NIH), the agency announced Wednesday. The announcement marks a long-touted milestone for the NIH’s unprecedented “All of Us” precision medicine project. To date, researchers say, no government study has returned individualized genetic data to participants – especially a group so large and diverse. The data will provide participants a deeper look into their own ancestry and genetic traits, their genetic predisposition to certain diseases, and, potentially, genetic factors that could impact the effectiveness of prescription drugs. NIH will also offer a more in-depth genetic counseling service to all study participants and urge it for those who have a genetic factor that could impact their health care. The pilot program is also unprecedented in its inclusiveness: 51% of participants to date come from historically marginalized racial and ethnic backgrounds. Representatives of All of Us will be in attendance at the PACHC Annual Conference & Clinical Summit in October for those who want to learn more or participate.